Anti-Vax Parents vs. Pro-Vax Parents in Minnesota

The Minnesota Department of Health has proposed changes to current state immunization rules. These changes would merely bring Minnesota Immunization Rules into line with current CDC immunization recommendations. Predictably, anti-vaccine parents have protested these changes, which, in fact, do not affect them in any way, since the changes do not touch the philosophical exemption clause (much to my disappointment). There will be a hearing on these changes on June 27th, 2013, because more than twenty-five people asked for one. Chances are the people who asked for this hearing are anti-vaccine voices. And, as is unfortunately routine, those proposing these much-needed changes to immunization law, are hearing almost solely from anti-vaccine voices. Here is an opportunity for pro-vaccine parents to step forward and speak up in favor of vaccines. If you are a Minnesota parent, please write a letter of support regarding these rule changes. And please attend the hearing on June 27th, 2013, at 9:30 am to make your voice heard. 

Below is my letter.

To Whom it May Concern:

I am a Minnesota parent who is fully in support of the Minnesota Department of Health's proposed new immunization rules strengthening Minnesota immunization statutes and bringing them in line with current CDC recommendations. In the past three years, we have seen measles outbreaks in Hennepin County due to undervaccination, as well as one of the highest pertussis rates in the country. As a parent, I find this abominable. The economic cost of these outbreaks is substantial; the human cost is infinitely higher. And these outbreaks are preventable, if parents would vaccinate their children on schedule. 

I am also angry that my fully vaccinated children attend school with children whose parents have chosen not to protect their own offspring with vaccines, and therefore put their immuno-compromised classmates, and the infant siblings of others, at risk of contracting vaccine-preventable disease. There are so few obstacles to anti-vaccine parents and they bear no burden by not vaccinating. That burden is borne by the members of the community, including other children. I find that deeply unfair.

These proposed changes are reasonable and much-needed. I wish they would go further, and make it at least as difficult to opt-out of vaccines as it is to actually keep you kids on the CDC-recommended immunization schedule. I look forward to sharing my thoughts on this matter on June 27th.
Ashley Shelby

Moms Who Vax: Breastfeeding, Baby-Wearing, and Vaxxing

 By Kim Norton-Jurgens

I breastfeed my children until they self-wean – openly in public. I baby wear and partially attachment parent.  I aim for drug-free natural births.  

And I vaccinate my children.

Some of my spare time is spent helping mothers with breastfeeding problems, and this community tends to attract many "natural living" people.  Occasionally I find they assume I don’t vaccinate my own children because I do work in this community.  I don't feel its fair that such assumptions should be made based on the views of a few people on the fringes of some very worthwhile endeavours, like trying to live a healthier life.  To counter these assumptions about me, I'm vocal about the fact that I vaccinate my children. I talk about it on Twitter, I post informative articles on Facebook – and while nobody “likes” my posts or comments, I get personal messages from people thanking me for being brave enough to share what we know is correct. 

             Here in South Africa we have two vaccination schedules – a government one, which is free at state clinics, and a private schedule, which is fairly costly but includes the MMR vaccine rather than just the measles shot.  I chose to use the private schedule.  I know quite a few mothers who use the state schedule and then go to a private clinic for the MMR.  Additionally, I’ve had my children vaccinated for hepatitis A and varicella (chicken pox), which aren’t on either of the schedules.   

For us, here in South Africa, vaccine-preventable diseases are still a threat. When I was a child, there was a boy in my class who had had polio and who wore callipers and used crutches. On the farm I grew up on, one of our employee’s children had had polio.  I can remember friends having measles and my mother keeping us well away from their house.  Here TB is not an abstract threat – we all know someone who has had TB contracted from someone or from drinking unpasteurised milk.   

Unfortunately, if you’re a parent, you’re exposed to so much misinformation and emotional rhetoric about everything from the moment of conception onward that you do always have time to think carefully about the trustworthiness of the information you’re given.  Ironically, the very questions that anti-vaxxers feel one should ask of the medical community are the precise questions they don’t ask of the “natural health” purveyors and anti-vaccine organizations from whom they get their information. 

             What upsets me a lot is that with the relentless misinformation campaign of anti-vaxxers, even the most ardent vaccinator still takes a deep breath before booking the appointment for the MMR.  I know anti-vaxxers claim many other reasons for not vaccinating, but that false autism-MMR connection is the one that gets the most publicity.  Each and every claim made anti-vaccine activists make is so easily debunked – over and over and over—that it is shameful that there are still people who just swallow this information and don’t ask questions. 

             What I do know is that I am doing the best I can to protect my children from preventable diseases.  (I also know that both my son and my daughter will be getting the Gardasil vaccine.) I hope that by sharing this information, I can give courage to other parents who vaccinate to stand up and proudly say that they do, and to counter misinformation when they hear it.  Because vaccination is not a personal choice. 

Kim Norton Jurgens is a mother of two and a Human Resources Manager. She has a degree in business commerce and is married to a journalist. She lives in South Africa.

Editor's Note: Kim shared with us her favorite immunization sites:  "My little arsenal of web sites for sharing reliable information with others includes Anti-Anti-Vax, What's the Harm, QuackWatch, Science-Based Medicine, and Voices for Vaccines."

They Don't Speak for Me: Why We Must Act Now

As a parent who vaccinates your child, you probably don't know that as you are going about your daily life, parenting, working, doing volunteer work, writing the Great American Novel in your spare time (what spare time?), a very small but vocal army is pounding the pavement in your name.

It may surprise you to know that the anti-vaccine movement has long claimed to speak for parents in this country when it comes to vaccines. And it is because they are so vocal and we are so, well, busy living our lives, that legislators, government officials, and even some public health organizations think that anti-vaccine activists who believe the MMR causes autism and that the decline of vaccine-preventable disease is due to "better hygiene" represent parents as a whole, when it comes to immunization in this country.

The vast--vast--majority of us choose to vaccinate our children for two reasons: one, we don't want our children to suffer from a preventable disease, possibly become seriously ill, or even die; and two, we don't want any of those things to happen to our neighbors either. Here's the problem: we don't talk about it. I suspect this is because we consider it commonsense. One mother on this blog wrote a post titled: "There's an Anti-Vaccine Movement?" because it had never occurred to her before she had children that people would willingly forgo something that has nearly eliminated one of the most dreaded diseases in human history (polio) and saved the lives of countless children and adults from other diseases that, if not kept in check by widespread immunization, cause unimaginable amounts of suffering.

We never thought we'd have to advocate for something that saves lives, especially the lives of children.

But here we are, and our complacency and our silence has allowed a fringe minority to sit at the table of public health in our place. And there are now consequences for our silence. In Vermont, a common sense bill that would make it more difficult for parents to "conscientiously object" to vaccines and still be allowed to benefit from the public school system has been derailed and defanged because of a highly organized counterattack from anti-vaccine forces, led notably by Barbara Loe Fisher's National Vaccine Information Center (a cleverly named anti-vaccine activist organization). In Oregon at this moment, legislators are considering a simple addition to immunization law that would require parents who opt-out of vaccines to receive educational materials about the risks of vaccine-preventable diseases. The fact that anti-vaccine activists objects even to this speaks for itself. These are the fears of anti-vaccine parents who do not want any obstacle in their quest to get their kids in school with the general population while not having to get those kids immunized.

Who have these legislators heard from? You guessed it: anti-vaccine parents and activists. And not just those living in Oregon. They are getting e-mails and letters from all over the country from people who will fight tooth and nail to preserve their ability to opt-out of immunization and keep their kids in school.

Who haven't they heard from? Us. The parents who vaccinate. The overwhelming majority of us who vaccinate our children because it's the right thing to do for us personally (our kids are protected) and because it's the right thing to do as human beings who live in a community (we protect others). We are the parents who likely would not dream of sending our sick kid to school and infecting his entire class. We are the ones who used common sense. And we're sitting back letting people who have chosen fear and lies over evidence and science speak in our names.

If I sound a little more passionate than usual, it's because I'm angry. We must rise up as a group and take back the conversation. We must let lawmakers know where we stand. I think back to my high school civics class, where we were taught that lawmakers take each letter they receive and apply that strange political calculus to it that, in the end, makes that single letter speak for 10,000 people. Right now, there are legislators in Oregon who believe that millions of parents do not believe in vaccination and do not want the law changed to better protect the community. Let's prove them wrong. You can write and voice your opinion on SB 132, the Oregon bill currently in committee by visiting this site from the Oregon Pediatric Society. It will take you directly to a form where you can write your note. It needn't be long--although mine was about four paragraphs--and you don't have to be a citizen of the state of Oregon (although if you are, we really need you). Let's do this--let's go letter for letter, and beyond. Let's make sure the people who make our immunization law know that we are here, that we care, that we are the 95%.

Moms Who Vax: A Response to Rep. Mary Franson

By Karen Ernst

Editor's Note: At a committee hearing in the Minnesota State Legislature on January 30th, state representative Mary Franson made comments about autism and vaccines in an otherwise unrelated discussion about whether insurance companies should be compelled to cover services relating to an autism diagnosis. These comments are representative of Franson's ideas about vaccines, as she has sponsored several bills that would weaken current state immunization rules. Below is parent Karen Ernst's response to Franson's comments.

I’m deeply disturbed by Minnesota State Representative Mary Franson’s comments during the House Health and Human Services Policy committee meeting on January 30, 2013.  While discussing funding for autism services, Franson commented: “As a mother of three children, I am very thankful than none of my children have had to experience autism, or my family hasn't had to go through that experience. But also, I'm one of those parents that no longer vaccines [sic] either because of the fear that I have had talking to other parents that have experienced their child becoming--experiencing autism after what they found, what they believed correlated with the vaccinations.”

I know many children on the autism spectrum.  Their parents are grateful that they are who they are and do not wish for them to be different. Their parents also readily protect their children from diseases prevented by vaccinating them.  The fear of autism is spread along with anti-vaccine misinformation, and neither is based on reality.

Stated plainly: vaccines do not cause autism.  Andrew Wakefield, whose poorly designed study was retracted shortly before he lost his license to practice medicine, has gained much financially in promoting the dangerous and erroneous idea that vaccines are linked to autism, but they are not.  Dozens of studies across the globe have shown that vaccines and autism are not related at all.  The science is settled.

One wonders why an elected representative is promoting both thoroughly debunked ideas about vaccines and hurtful sentiments about autism. Let’s hold our representatives to a higher standard and demand that they be grateful for the existence of all children and that they support measures that prevent potentially deadly diseases.

Moms Who Vax: Crazy Vaccine Lady

By Johanna H.

There is a meme that comes around every so often, one that I think is very easy to relate to. It shows a stick figure thoroughly frustrated at the computer who

is resisting going to bed because "someone is wrong on the Internet." I always chuckle when I see it, because there have definitely been those times in discussions on a wide variety of topics where I've just had to step away and let people "be wrong," if they choose to be. But I still post the Facebook links about vaccine safety, what new vaccines may be on the horizon, even though sometimes it feels like maybe I'm either boring the living daylights out of all the poor people who are friends with "that crazy vaccine lady" or even causing fights but continuing to post regarding a controversial parenting decision. 

But this week a friend quietly told me that her children are now fully vaccinated in large part because of the information she was getting from me, but more

importantly because she simply had a counterweight to the anti-vaccine environment that she is surrounded by. Just having someone in her tribe of moms who fully immunizes helped give her the ability to feel confident in a choice to vaccinate her children. My friend is a loving, strong woman who makes educated and mindful decisions. In this case, all she needed was to see someone else making those same choices, too.

This is why I share on Facebook when the latest study on flu vaccine safety comes out, or when there is an update on how close to eradication we are with polio.

Every share, every bit of advocacy helps to create a culture that is more hopeful, more confident, and more at peace. I am The Crazy Vaccine Lady not because I

am so dazzlingly clever or because I’m just that committed to making sure all the "i"s are dotted and "t"s crossed, or even because somewhere somebody on the

Internet (or in the homeschool co-op) is wrong.

I will wear that Crazy Vaccine Lady badge because parents have a right to be afraid of the right things. And speaking parent to parent, mother to mother, is how

lives can be changed, and even how some lives will be saved: one conversation, one parent, one child, one shot at a time.

Johanna H. is a Catholic work-at-home mom who lives in the Northeast with her husband and six children.

It's About Time: Voices for Vaccines

The reason this blog exists—why it continued beyond our initial efforts—is because of fellow parents. Since starting Moms Who Vax, Karen and I have met many remarkable moms and dads who choose to vaccinate their children and are, frankly, fed up with the lack of push-back against the loud and rancorous voices of parents who intentionally leave their children unvaccinated. By sharing their stories, we know many of these parents have changed minds, provided reassurance, perspective, and sanity.

But it’s not enough. It’s one thing to blog. It’s quite another to join forces in an official way, under the auspices of an organization. Organizations get invited to conferences. They get a seat at the table. They can streamline advocacy efforts, print flyers, provide educational materials, reach out to media, provide members to testify at legislative hearings. Time and time again, Karen and I heard parents asking: what else can we do?

Now we have an answer: join Voices for Vaccines.

Over the past eight months, Karen and I have been working with vaccine legends Dr. Deborah Wexler, Dr. Paul Offit, Dr. Alan Hinman, and Dr. Stanley Plotkin to re-launch—and perhaps more important, to re-imagine—their pro-vaccine advocacy organization, Voices for Vaccines. Initially designed to be the “go-to source for vaccine information,” the project stalled, despite great interest. When Karen and I came to the project, we both felt very strongly that a parent-driven, parent-focused organization was the missing link in this vaccine conversation. More than ninety percent of parents overall vaccinate their children. If this is the case, why are the anti-vaccine parents the ones we see in the media, on blogs, in the comment sections, and at legislative hearings? Why is the anti-vax National Vaccine Information Center the dominant parent organization in the vaccine world? It was this conundrum that we wanted to address, and the founders of Voices for Vaccines were in complete agreement.

Karen and I held a few conference calls with some of our past contributors and trusted partners to share the initial idea, and when we gave them a description of this new direction, the excitement was palpable. One of our “Moms Who Vax” said she’d been dreaming about such an organization for years. The enthusiasm was infectious (no pun intended--okay, pun absolutely intended), and it has kept us going over these last six months. Between preschool, soccer games, dance lessons, our day jobs, and our other vaccine-related efforts, this thing slowly came together, along with the help of some amazing individuals, including Immunization Action Coalition's Julie Murphy and Mike Franey.

Now we are ready to open the workshop doors, and even though we still have work to do, particularly on the website, we didn't want to delay bringing pro-vax parents into the fold any longer.  At Voices for Vaccines, you will find a home for the ninety percent of us who vaccinate our children on time. You will find vaccine information vetted by the best minds in vaccinology, but you will also find opportunities to make your voice heard—in your local community as well as nationally. You can share your story in the VFV blog Parents Who Vax (still a work in progress). You will be able to download toolkits on topics from “How to Write an Op-Ed” and “Keeping the Media Honest” to “How to Talk to a Vaccine-Hesitant Parent” and beyond. You can sign up for the VFV newsletter to stay on top of the latest vaccine news and to receive action alerts, including calls for comments on articles about vaccine topics (typically dominated by anti-vax voices) and invitations to conference calls with heavy-hitters in the medical and scientific communities, and beyond. Learn about opportunities to join forces with other pro-vax parents! We need you--your creativity, your ideas, and your passion. 

We have a new website, although it is far from complete and still in need of fixes and design tweaks. But this is just the beginning. Even more changes are in store, and we want you with us. Please join VFV and join forces with other pro-vax parents to take over the world—or at least protect children and vulnerable members in our community from vaccine-preventable disease and bad science!

For us, and for the founders of VFV, this relaunch is the stuff of dreams. A national organization uniting parents who vaccinate and are passionate about it?

It’s about time.

Editor's Note: If you're in Minnesota this weekend, please come to the Voices for Vaccines' launch party, "Our Voices Rockin' at downtown Minneapolis' PourHouse. Hosted by Don Shelby and featuring the music of rock band Verge, there will also be a silent auction. Saturday, January 19th, 7pm-10pm. Suggested donation of $10 and 21 and up. Hope to see you there! 

"This Mama is Exhausted"

The other day, a mom e-mailed us asking for guidance for writing a letter to her state legislators regarding her concern about the rise in vaccine-preventable disease, particularly pertussis, and her state's lax immunization laws. In doing some research on this year's pertussis situation, I came across some remarkable statistics. That 2012 is the worst year for pertussis in nearly sixty years. That Washington State has a full 11% of the nation's pertussis cases (an infant has already died from the disease) while also being the state with highest conscientious objection vaccine-exemption rates. That my home state, Minnesota, is suffering a terrible pertussis year, with more than 4,000 cases recorded at the Minnesota Department of Health. 

But the most remarkable piece of data I came across was not a statistic. It was a story. It appeared on the notably anti-vax forums of Mothering.com. One mother did not vaccinate her younger children against pertussis. Then her children contracted pertussis. From her post: 

Sure they may end up with full immunity to pertussis (at least severely), but my 9yo and 11yo have suffered tremendously with uncontrollable coughing fits that wake them up every hour or two and leave them gasping for breath, gagging and sometimes vomiting.  They are exhausted.  The mama is exhausted...

sometimes running upstairs to comfort them dozens of times in a couple hours.  My 4yo has been up many nights herself and while not to the severity of the older two, it could break your heart to see her cough.  My 2yo is just starting to cough.  When the 9yo and 11yo started whooping and the severe cough we took them in to be seen and we have now been prescribed antibiotics for the entire family.  While I suspect the oldest 3 of us were exposed first, we won't take any chances in spreading it to anyone, and because I am 25 weeks pregnant.  I am hopeful that they will prevent my youngest little one from getting to the severe cough point. 

We have always said that we will choose not to vaccinate but always been willing to re-evaluate our decisions like any other.  When we found out the pertussis was circulating in our region we had decided to go ahead with the shots and even called the health dept...the kids came down sick literally 2 days later and the shots were postponed.  Sick irony if you ask me!

She goes on to say she know she will "catch some flak" for these comments, which is a profoundly sad commentary on the anti-vaccine community, if you ask me. But I was stunned by this mother's strength of character to not only decide that her decision not to vaccinate her little ones for pertussis was a mistake and to schedule those shots, even if she was too late, but also to stand up in a hostile environment as an insider (not as someone coming from outside the group) and say: the vaccine is better than the disease. I don't know if she will choose to catch her children up on all their vaccinations (one can hope) but I find this particular story, and this particular mom's courage, inspiring.